Increasing awareness and knowledge of Alpha-gal Syndrome in the United States
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Summary
This NOFO’s aim is to improve awareness and knowledge of alpha-gal syndrome (AGS) in the United States. AGS is an emerging condition and is not nationally notifiable. This will happen through:
- The creation of a professional network of AGS researchers and public health professionals.
- Improved surveillance.
- Improved communications materials.
This NOFO seeks to improve:
- AGS surveillance.
- Patient care.
- Awareness and understanding.
The NOFO’s three main strategies are to:
- Share: Disseminate the latest knowledge about AGS among stakeholders to improve patient care for AGS and the public health response.
- This includes public health agencies, academic researchers, and
advocacy groups.
- This includes public health agencies, academic researchers, and
- Track: Conduct active or enhanced surveillance for AGS.
- This strategy could involve patient populations or geographic locations with limited access to specialized healthcare provider care.
- Educate: Create AGS communications targeted at the general public, AGS patients, and/or people at higher risk for tick encounters (outdoor enthusiasts, dog owners, etc.).
- Communications targeted at healthcare providers, healthcare provider educational resources, and training would also fall under this strategy.